Questions and Answers about the DSAIA and NDSC Merger

Why is DSAIA merging with NDSC?

The proposed DSAIA merger with NDSC will offer significant benefits to both DSAIA and NDSC.  For DSAIA, by integrating our efforts, a staff person will be dedicated solely to membership growth and addressing the needs of Down syndrome associations across the country.  This individual would have access to an established infrastructure, allowing them to focus on what truly matters: supporting our members.  For NDSC, the merger would provide access to DSAIA’s network of 80+ member organizations, significantly expanding NDSC’s reach and influence within the Down syndrome community. This expanded network would re-energize an NDSC affiliate model, allowing for more direct and meaningful engagement with Down syndrome organizations nationwide.

 How will this merger benefit DSAIA members?

As stated above, a merger will directly benefit members by allowing the DSAIA Program Coordinator to fully focus on member benefits exclusively.  Under our current operational model, the DSAIA ED was responsible for: conference planning and organization; operations and logistics of running a non-profit (HR, IT, accounting, website, etc); and member support.  NDSC staff (HR, IT, Accounting) will take over the day-to-day operations of running the business and their conference team will take over the lion's share of logistics for the conference.  The DSAIA Program Coordinator, along with members of AIA BOD who will participate in the conference planning committee, will be able to focus on planning a great pre-conference for AIA members and providing the best training, speakers and exhibitors available. 

Additionally, as a large national organization, NDSC will be able to offer members perks under their umbrella, such as life insurance policies and other discounted services.  By joining forces, AIA and NDSC will have better leverage power to negotiate services for smaller organizations, that might otherwise have little negotiating power with large corporations. 

 Will DSAIA still exist as an independent organization?

The brand of DSAIA will continue, but it will merge under the umbrella of NDSC from an operations standpoint.  It will not be an independent 501c3.

 What are the goals and objectives of the merger?

The proposed merger between Down Syndrome Affiliates in Action (DSAIA) and the National Down Syndrome Congress (NDSC) represents a strategic and mutually beneficial opportunity to enhance the impact of both organizations within the Down syndrome community. By combining resources, expertise, and networks, this merger will address DSAIA's current challenges while simultaneously expanding NDSC's reach and effectiveness.

The alignment of missions, the integration of valuable programs, and the creation of a unified governance structure will enable the merged entity to provide even greater support, advocacy, and education to individuals with Down syndrome, their families, and affiliated organizations across the country. This merger is not merely a consolidation of resources but a visionary step toward creating a stronger, more resilient, and more impactful organization. Together, we will be better equipped to meet the evolving needs of the Down syndrome community, fostering an environment where individuals with Down syndrome can thrive and achieve their fullest potential.

 What is the timeline for the transition?

Both boards have signed a Memorandum of Understanding.  It will take a few months to reconcile the DSAIA financials and to file all the appropriate paperwork.  A search process to find a DSAIA Program Coordinator will be launched in March.

 How will this merger impact the mission and values of DSAIA?

The mission and values of DSAIA and it’s purpose will stay in tact, but operationally will fall under the NDSC organizational umbrella.

 Who was involved in the decision-making process for this merger?

All members of the DSAIA and NDSC board of directors were involved

 Will the DSAIA brand continue to exist, or will it be absorbed into NDSC?

It will continue, but under the NDSC brand identity as well.

 Will there be a transition period, and what will it look like?

Initial Integration (0-3 Months / March-May):
  • Establish new governance roles, including the work of all three committees that will support the affiliate’s program.
  • Nominate a DSA Executive Director to serve on the NDSC Board of Directors.
  • Have the individuals from the DSAIA Board or Membership Committee and those from the NDSC Staff Team personally connect with every current DSA member of DSAIA.
  • Conduct a search process to hire an Affiliates Program Coordinator.
  • Integrate key programs into the operations of NDSC.
  • Finalize the payment of all conference bills and transfer any remaining assets and ongoing account payable obligations to NDSC.
Transition (4-6 Months / June-August):
  • Submit all dissolution and tax paperwork to finalize the merger from a compliance standpoint.
  • Launch the new DSAIA website (a members-only microsite) that flows from the new NDSC website that is being launched this summer.
  • Onboard the new Affiliates Program Coordinator into the NDSC Staff Team.
  • Continue working on all three committees supporting the affiliates program with the new Affiliates Program Coordinator providing leadership and coordination for these teams.
Post-Transition (7-12 Months):
      • Evaluate the transition, make necessary adjustments, and fully integrate all functions within the NDSC framework.

 Membership & Benefits

How will my current DSAIA membership be affected?

It will continue and roll over.  Affiliates will have the option to renew or cancel once their yearly membership expires.

 Will membership fees change?

 No

 Will we still have access to DSAIA's resources and training?

Yes - NDSC is building a new website and part of it will be a DSAIA microsite.  A portion of it will be for members-only.

 How will the merger impact the annual DSAIA Leadership Conference?

The Leadership Conference will continue, but in a new format, as a pre-conference to NDSC’s Annual Convention in July 2026. Many of you have requested this change over the years, as it reduces travel costs and allows for greater participation.

 Will NDSC provide similar member benefits that DSAIA has offered?

Yes, but we expect to add new ones in the future.  One that is being worked on is a Multiple-Employer 401K plan.  See Jim Hudson for more details.

 Will DSAIA’s accreditation program continue under NDSC?

 Yes

 How will this merger affect my ability to network with other Down syndrome organizations?

This is a core component of DSAIA, and we will look for even more opportunities for this to happen more often.

 Will my organization need to reapply for membership under NDSC?

No - your membership will roll over.

 Will there be a joint membership structure between DSAIA and NDSC?

There will only be one membership for DSAIA.

 Programs & Services

What will happen to DSAIA’s programs, such as Circles, Member-to-Member, Accreditation and training resources?

These will continue under the leadership of a new DSAIA Program Coordinator.

Will DSAIA’s online resource library be maintained?

 Yes, and improved.

Will there still be consultation services available for Down syndrome organizations?

These will continue under the leadership of a new DSAIA Program Coordinator.

 Leadership & Governance

Who will be leading the new entity after the merger?

Executive Leadership Transition:

  • A new position on the NDSC Staff Team will be created in the spring of 2025 to lead the DSAIA program under the umbrella of NDSC.  This part-time position will start at 25 hours per week, but the hours could increase if the membership base grows.  Jim Hudson, the NDSC Executive Director, will lead this search, but with the assistance of some DSAIA board members, who will round out a Search Committee.  This role will focus on continuing the work related to affiliate membership growth and support for Down syndrome organizations across the country by enhancing affiliate engagement and support.
  • This person will be incorporated into the NDSC Staff Team and report directly to Jim Hudson.

 Committee Integration and Continuity:

  • Currently, DSAIA has two active committees, plus the Board of Directors.
  • The Membership and Leadership Conference committees will be integrated into NDSC’s existing committee structure. These committees will continue to work under NDSC’s guidance, ensuring that the unique needs of DSAIA members are addressed.
  • We also want to add an Affiliates Support Committee to focus on the members' ongoing programming and support needs.
  • Existing committee members will have the opportunity to continue their involvement, ensuring continuity and leveraging their expertise during the transition.  Other affiliate members will also have the opportunity to engage with these different committees.
  • The Affiliates Program Coordinator will work closely with all three committees.

 Advisory Role of the DSAIA Board:

The DSAIA board will act as an advisory body, providing strategic advice and guidance throughout the transition period (three to six months). This will help align the merged entity's goals and operations with both organizations’ best practices and values.

This transition plan ensures that the merger strengthens both organizations while maintaining continuity and focusing on serving the Down syndrome community.  By thoughtfully integrating governance and leadership structures, we can create a unified organization better equipped to achieve our shared mission.

 Will DSAIA board members have a role in the leadership of the merged organization?

 Yes, the merged organization will integrate representation from the DSAIA board to ensure continuity of mission, experience, and member insights. Specific board positions and responsibilities are being finalized to maintain a balanced and collaborative leadership structure.

 Will there be an advisory board or committee for former DSAIA members?

Yes, an Advisory Committee will be established to represent former DSAIA members. This committee will provide ongoing feedback, advocate for member needs, and assist in developing new resources that align with the merged organization’s goals.

How will decisions be made moving forward?

Decisions will follow NDSC’s established governance framework with input from the integrated board and advisory committees. Transparency, member feedback, and alignment with the mission to support Down syndrome organizations will guide all decisions.

Who should members contact if they have questions or concerns?

Christina – DSAIA Board President- [email protected]
Jim – NDSC Executive Director- [email protected]
 

Financial Impact

How will this merger impact DSAIA’s financial stability?

The merger will enhance financial stability by consolidating resources, reducing administrative overhead, and increasing access to broader funding streams through NDSC’s established relationships.

What will happen to DSAIA’s current funds and assets?

All DSAIA funds and assets will be transitioned to the merged organization, with a designated portion earmarked to continue supporting programs and services originally provided by DSAIA.

How will the merger impact sponsorship and partnerships?

 The merger creates new sponsorship opportunities by expanding reach and visibility for partners. Existing sponsorship agreements will be honored, and joint efforts will target new corporate and philanthropic relationships.

Communication & Transition Process

How will members be kept informed about the transition?

Updates will be provided via email, social media platforms, and on the website.

Will there be town hall meetings or informational sessions?

Yes. There will be a townhall meeting at the Leadership Conference on February 22nd at 11:30. Please submit questions through the Webex Event app. Another virtual townhall will be scheduled in March 2025.

How can members provide feedback or ask additional questions?

Via email or conferenceWebex Event app