Help Us Thank Congress!

Tue, April 17, 2018 11:50 AM | Anonymous member

DSAIA is thrilled and deeply grateful to the House, Senate, and our President for passing the Omnibus budget! The budget includes $3 billion in new money for the NIH, including a big boost to Down syndrome research which has been underfunded for nearly 20 years. Please help us thank NIH and our bipartisan leaders!  

The provision, supported by the Global Down Syndrome Foundation, directs the NIH Director to lead a groundbreaking new scientific initiative to study immune system dysregulation and trisomy 21, with the aim of yielding research discoveries to improve the health of individuals with Down syndrome and typical individuals at risk for Alzheimer’s disease, cancer, cardiovascular disease, and autism, among others.  

Last year, the Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies, which provides federal funding for the NIH, held the first ever hearing on current and future research funding priorities for people with Down syndrome. The Subcommittee heard testimony from experts including Michelle Sie Whitten, President and CEO of Global Down Syndrome Foundation, Dr. Joaquín M. Espinosa, Executive Director of the Crnic Institute for Down Syndrome, and Frank Stephens, a Global Quincy Jones Award Recipient and Advocate.

PLEASE HELP US THANK YOUR LEGISLATORS for making people with Down syndrome a priority! Your thank you will ensure that we continue to receive equitable funding today and in future years.

Help us ensure funding today by writing a simple thank you!  It only takes 2 minutes

Below are links to find the contact information for your congressional representatives and senators! It helps if you cc: or forward the letter to

Representatives: Click here and put in your zip code to find your Representative. 

Senators: Click here to look up your Senators by their names or your state. Click on the contact link that appears by their name in the search results.

We are also encouraging all of the local Down syndrome organizations to help us spread the news of the Omnibus passing by sharing the information and attached graphic on their website, social media and newsletters. Thank you for all that your organization does to support families in your community, together we are making a difference!

Global is thrilled to know that its decade-long campaign to educate our government and invest in science has helped lead to this new development. Global looks forward to being a resource and working with the NIH as this initiative takes shape. This represents an amazing milestone for federal research on Down syndrome and our members and advocates join us in thanking Congress for making this a reality.

I want to tell you what WONDERFUL time I had at the conference. I learned so much and came away with lots of ideas for our organization. -Barb Waddle, The Upside of Downs of Northeast Ohio


Down Syndrome Affiliates in Action started as a conference bringing together outstanding leadership from Down syndrome organizations around the country. Learn More

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